We Cannot Change What We Cannot See: A Rationale for Patient-Reported Outcomes in Pediatric Oncology Clinical Research
Menée auprès de 438 triades enfant/médecin/aidant (âge moyen des enfants : 13 ans), cette étude analyse les différences entre les symptômes et événements indésirables rapportés par les enfants atteints d'un cancer, par leur aidant et par leur médecin
The story of pediatric oncology is largely one of success. In the past 50 years, cure rates for children with cancer have gone from 20% to 80%, and pediatric oncology cooperative groups have set standards for clinical trial collaboration.1 Today, the goal of pediatric oncology clinical research is to cure the 20% of children with refractory or relapsed disease while optimizing the physical and psychosocial well-being of the 80% who survive.2 Achieving this goal requires rigorous methods to measure (and address) patient symptom experiences. Thus, Dr Freyer et al3 aimed to assess child-clinician-caregiver concordance of symptom reports in a prospective, longitudinal cohort study of English-speaking children (age 7-17 years) with newly diagnosed cancer.
Journal of Clinical Oncology , éditorial en libre accès, 2021